About Us

The Hungarian Foundation for Corpus Callosum Disorders (AgCC):

Eszter Szabóné Katona, Founder:

As a child, I was slow. It would take me four hours to eat lunch, and I had a hard time learning to tie my shoes and tell time. At age 6, I was assessed, and they told my mother, "She's a little slow, but she should go to school," even though I didn't even meet the 20kg weight requirement for school at the time; I was only 19kg. Unfortunately for me, I was taught to read using the Zsolnay method, and because of it, I still struggle with reading aloud today. As I know now, my slowness was obviously due to my Agenesis of the Corpus Callosum. I struggled through school with mediocre results and eventually dropped out of university; I simply couldn't handle the volume of material. Coming from a family of intellectuals, I was very ashamed of this at the time, but today, I am very proud of the 2.5 semesters I did complete (at ELTE, Faculty of Science, studying to be a Geography teacher). The stress inside me also took a toll on my spine, which is when I began to experience periods of paralysis due to what I believe was Scheuermann's disease. From 2000 to 2002, I lived in Australia, where I successfully completed a college-level course in Tourism Management—the equivalent of only a vocational qualification back home. While I had been struggling in Hungary, I passed a law exam there with a 92% score—in English. The education system there is completely different; it's project-based and doesn't focus on rote memorization. In 2007, due to severe headaches following my two pregnancies, the head of the headache clinic ordered an MRI. That's when it was discovered that I have Agenesis of the Corpus Callosum. However, the doctor didn't address the issue, and absolutely nothing came of it. In the same year, I went to a different foundation where they determined I had dyslexia. I went back to work in 2009, and somehow, I couldn't find a job without my father's help. (Somehow? Today, I know why.) I constantly felt that there was more to it than just dyslexia, which led me to the Adult ADHD Center. There, in 2020, I finally received the diagnosis that I have 'dys' symptoms (in my opinion, dyscalculia as well), along with autistic and ADHD-like traits, all stemming from Agenesis of the Corpus Callosum. Since then, I had another MRI in January 2022 to get a higher quality image, and I started researching this condition. You can see the results of this work in the Foundation, as well as in the many translations and conference attendances I've undertaken. Additionally, I run a small business where I am introducing an American parenting method to Hungary at elenkgyerekek.com (you can look it up if you're interested), and I also work part-time, four hours a day, as an administrator.

Irén Tormáné, President of the Board of Trustees:

My name is Irén Tormáné. I have five children, three of whom are ill. I myself have mitochondrial disease and a spinal condition. I am not personally affected by this disorder, but my connection is as a parent. 

I have a 14-year-old son who is very severely affected by AgCC. My child has multiple disabilities. He also has mitochondrial disease, a more severe form of it that only about 200 people in the world have. 

The brain disorder has led to a severe disability; his developmental level is equivalent to that of an approximately 10-month-old child. Unfortunately, he has been ill since birth but only received a definitive diagnosis in 2020. Since then, he has had to take numerous dietary supplements and medications. We also attend various treatments and developmental therapies.

Tímea Kun, Board Member: (Bio coming soon)

Dr. Lilla Sipos, The Foundation's Psychologist:

My name is Dr. Lilla Sipos. I am a psychologist and the mother of three children. I graduated from ELTE University with specializations in Health Psychology and Developmental Psychology. After completing my degree, I remained at the university to pursue my doctorate. My research focused on infant development, mother-infant interactions, and the development of premature infants. From 2006 to 2020, I worked as a lecturer at ELTE. Alongside my academic and research activities, I have always practiced as a psychologist. For seventeen years, I was the psychologist at the Educational Counseling Center in Budapest's 15th district. During this time, I supported and guided hundreds of children and families. I also served as the director of the institution for a period. I am trained in Gendlin's Focusing Therapy and Ayres Sensory Integration Therapy. I am also a certified psychodrama leader and a trainer in child psychodrama.

Contact: Email: lillasipos@gmail.com, Phone: +36 30 352 0235

Kéregtest rendellenesség AgCC Magyarországi Alapítványa:

Adószám: 19340414-1-43

Bankszámlaszámunk: Magnet Bank 16200144-18553479